Living Day By Day!!!!

Hey My Friends, Hope your Thursday is going very well.

Sharing a quick checkin!

I have been grateful for the feedback I have received from many of you. I have said this often, “I am on a journey I have never been on.”

I want you to know, I feel like I have more time. I mentioned yesterday all of us have today!

My walk with a terminal brain tumor has given me a very different perspective about my life. The normal expected timeline for glioblastoma is 6-18 months. I know I have mentioned that often. I am on month 38. I am a very blessed and grateful man.

I have no idea when my time is up. Things are very different these days. The brain tumor got active and noticed about 2 months before I had that special 30 min radiation. The radiation happended the last week of September and 3 days later we added infusion treatments.

Since that happened, I have never felt the same again. Month to month it all seems to be getting a little worse. The two big differences have been pain and discomfort in my legs 24/7. That has never gone away. The worst pain is when I sit in a regular chair for more than 15 minutes. Riding in a car for more than 10-20 minutes and my butt and legs are screaming. The other addition is my arms feel incredibly weak every day now. My arms and legs have both shrunk significantly. I deal with some pretty bad headaches some days.

I would never share that expecting anyone to feel bad for me, or feeling like I am asking you to do something for me. I am still here, living my life, loving my wife and kids, friends and others. Life is a gift and God has been, so so gracious to me.

I added that picture of me today. A warmer day and I put my vest on and went for a short walk. I try to use my vest occasionally these days. You get to guess how heavy that vest is and how far I walked. That does not matter to me these days. I got out in the sunshine, a beautiful day, walking in nature and thanking God for today.

My legs are not happy, and I actually may go lay down for a short nap. I would tell you every time it is worth it. There are a few things I still do each day. That matters to me.

The timeline does not matter…I want to continue to live each day as well as I can!!

Do you have any struggles in your life? The norm would be that each of us do. It is pointless to measure struggles. I can’t list mine as worse than or matters more than others. I would have never chosen this challenge. I do get to decide this each day… “What am I going to do with it?” That’s what really matters for each of us.

Remember, You are Loved and of Great Value!!!!!!!!!